Showing: 41-50 of 173
Tina Bailey said:   April 20, 2009 3:05 am PST
is there any information you may be able to give me in making my community aware of epilpsy my 15 yr old daughter was diagnosed in june with epilpsy which her seizures are uncontrolled and we are having a hard time out of the school from this i also have had epilpsy since i was 26 yrs old but mine was due to having brain surguries over many yrs the doctors have no clue why she is having them i'd like to start a support group since there is none in my area or near and maybe start a yearly walk to raise money and awareness could you please tell me where to start or at least how to start thank you tina ps. glad your son is doing so well keep up the support for him

boola said:   April 17, 2009 8:39 am PST
Hay little buddy thinking about you today I hope everthing goes ok today at the docs be strong let me see those muscels LOVE YOUR FRIEND BOOLA BOOLA

dessa said:   April 16, 2009 7:27 pm PST
Hi Joaquin, my son Louden & I were checking out your website. He thinks you're a brave kid & so do I! Louden wants to know what your favorite toy is & I would like to know what is your favorite song? Thanks for the website; School House Rock said it best: Knowledge is Power!

BOOLA said:   April 15, 2009 2:42 pm PST
Just saying boola boola And you could call me any time you want ok and we can boola boola and boola boola all you want

Michael & Sonia said:   April 14, 2009 11:34 am PST
Hello Joaquin and Family I hope all is well and that you get this message in great spririts. Been thinking of you folks @ Everybody wants some. Peace to all of you. Peace and God bless you. We love you guys.

Ginny Miller said:   April 8, 2009 6:44 pm PST
Great job little punk man! My big guitar guy would love to jam with you anytime! We both have epilepsy and just got back from the National walk! We are not afraid to TALK ABOUT IT either! With Kids like you and my my Sam, we can work together to stop stigma! Guitarmom!

Fortune Cookies said:   April 2, 2009 12:17 pm PST
hey, you don't have to show this post, but I just wanted to let you know that I blogged about you today and posted links to your blog and your web site telling my readers to come check you out. Best wishes!

Doug Mance said:   April 2, 2009 12:16 pm PST
Another message from the Board of the Epilepsy Foundation of Arizona. I just got back from the National Walk on the Mall in DC. You have to check out a new website!!! www.TalkAboutIt.org Greg Grunberg from the TV show Heroes started it up...its awesome. Add it to your links on this page Ghery.

Fortune Cookies said:   April 1, 2009 11:15 am PST
Joaquin, You have a super cool site here! And I must say your Mom and Dad had an awesome idea! You rock those posters like no one's business, little man! I have to agree with a previous comment up there...you even rock the eeg leads! I looked like something out of Alien vs. Predator when I did the epilepsy study. Keep on keeping on, and remember SEIZE THE DAY!

Victoria De La Torre said:   March 27, 2009 7:53 am PST
Hey little dude, we've never met, but your Dad and my husband and I all grew up in Douglas together. We hope that you enjoy the good parts of each and every moment you have playing with your brother, watching cartoons and learning new things. I know that your seizures are really scary, but your family loves you more than you can imagine and they'll always be there for you to get you through those times. Maybe one of these days you can meet our daughter Celestine. She's also 3 and we just found out that she's sick with Leukemia. She doesn't have cooties though, so when she gets out of the hospital and her medicines help her feel better, let's all go out to eat pizza and play at the park, okay? Take care!

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